Party Recap
At my 19 week ultrasound it was suspected that my child had some birth defects. A few days later it was confirmed that our 1st child had Trisomy 18 (aka Edwards Syndrome) a chormosome abnormality. We were given options on abortion, hospice and funeral homes. We were told to forgo additional prenatal care and that the heart defect that was present couldn't be repaired because as the doctor stated "the babys fate is sealed". We were told that our child wouldn't survive birth and somehow if she did she probably wouldn't make it long enough for us to take her home. She was born at 41 weeks and 3 days on 3-24-12. She lived and we took her home 2 days after birth. We were met with constant resistance and refusal for operation to help our daughters heart defect because of her Trisomy 18. We found a hospital that was willing to treat our child as just that "a child" and not her disorder. She survived heart surgery at 3 months only weighing 7lbs. Though many Trisomy 18 children don't make it to their first birthday, our Mylah defied many odds and overcame numerous hurdles. We celebrated her birthday each month and had planned to throw her a HUGE party if GOD allowed her to live to see "1". Mylah is LIVING with Trisomy 18 and is a happy baby. She receives support from a ventilator until her body is big and strong enough to maintain on her own. This is Mylah's Candyland. check our our blog at www.mylahsjourney.blogspot.com
Party Highlights
-
What People Ate
Pizza, salad
-
What People Drank
Water, Punch
-
Best Moment
Being interviewed by our local TV station about our story.
-
Most Touching Moment
When all the guests gathered to sing Happy Birthday! Everyone was able to participate and witness this awesome milestone
-
Best Dressed
Mylah of course!
-
Desserts
Cupcakes, Cake
-
Party Favors
Water Bottles, Personalized pencils, Party Bags,
-
Activities / Games
Photo Booth, Face Painter, Balloon Artist
-
Budget
Nothing out of reach for this celebration!
Party Helpers
-
Greg Taylor of Visual Fantasies Balloons
Balloons
Great guy!! Very professional and has YEARS of experience. http://www.vfballoons.com
313-737-5607
-
Freeze Frame Photo Lounge
Photo Booth
This company by far is the best! Great personalities! I can't wait to do business with them again! Showed up on time and interacted with our guests. I'm still receiving good reviews about their services. http://www.myfreezeframes.com/
810-513-0929
-
Sweet Nothings Fine Cakes & Desserts
Cake designer
Awesome cakes, wonderful designs, and superb taste!http://www.sweetnothingsfinecakesanddesserts.com/
734-285-2253
-
Janelle Pink Hippo Boutique DIY
Graphic Designer
QUick turnaround and I printed the invites on matte paper at our local warehouse club. She designed the Thank Yous, Invites, GIft Bag Tags, and Water Bottle Labelshttp://www.etsy.com/shop/PinkHippoBoutiqueDIY
-
Oriental Trading
Party Favors
Ordered the pencils, always look for a coupon on social media!http://www.orientaltrading.com
-
Stumps
Decorations
Great price on standees and banner! Use social media for coupons and check out their coupon page. http://www.stumpsparty.com/
-
Shindigz
Decorations
Good pricing; social media coupons!http://www.shindigz.com/
1 comment
Ladricca P wrote:
OMG..... these was so beautiful...... I love the pictures of Mylah's Journey..... Thanks for sharing.
To leave a comment Log in -or- Join the party