Mina P created
- 140 guests
- 23 March 2013
- Local Church / Southfield / Michigan / United States
PhotosView all 59 photos →
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At my 19 week ultrasound it was suspected that my child had some birth defects. A few days later it was confirmed that our 1st child had Trisomy 18 (aka Edwards Syndrome) a chormosome abnormality. We were given options on abortion, hospice and funeral homes. We were told to forgo additional prenatal care and that the heart defect that was present couldn't be repaired because as the doctor stated "the babys fate is sealed". We were told that our child wouldn't survive birth and somehow if she did she probably wouldn't make it long enough for us to take her home. She was born at 41 weeks and 3 days on 3-24-12. She lived and we took her home 2 days after birth. We were met with constant resistance and refusal for operation to help our daughters heart defect because of her Trisomy 18. We found a hospital that was willing to treat our child as just that "a child" and not her disorder. She survived heart surgery at 3 months only weighing 7lbs. Though many Trisomy 18 children don't make it to their first birthday, our Mylah defied many odds and overcame numerous hurdles. We celebrated her birthday each month and had planned to throw her a HUGE party if GOD allowed her to live to see "1". Mylah is LIVING with Trisomy 18 and is a happy baby. She receives support from a ventilator until her body is big and strong enough to maintain on her own. This is Mylah's Candyland. check our our blog at www.mylahsjourney.blogspot.com
What People Ate
What People Drank
Being interviewed by our local TV station about our story.
Most Touching Moment
When all the guests gathered to sing Happy Birthday! Everyone was able to participate and witness this awesome milestone
Mylah of course!
Water Bottles, Personalized pencils, Party Bags,
Activities / Games
Photo Booth, Face Painter, Balloon Artist
Nothing out of reach for this celebration!